Patient experience

2025 - Consultation response - Submission to call for evidence on Shaping the national cancer plan
We welcome many of the proposed approaches outlined by the Department of Health and Social Care in this call for evidence. It is critical however that the national cancer plan is designed and delivered in partnership with patients.

2023 - Consultation response - Submission to call for evidence for the Major Conditions Strategy
We submitted evidence on how best to prevent, diagnose treat and manage six major groups of conditions based on what we heard in our survey.

2021 - Consultation response - Non-emergency patient transport
Our response to proposals arising from the review of non-emergency patient transport

2021 - Consultation response - Submission to call for evidence for a Women's Health Strategy
We submitted evidence for the planned Women's Health Strategy, outlining what women told us about their experiences of health and care.

2021 - Consultation response - Clinical standards for urgent and emergency care
In our response to proposals to change the NHS's approach to waiting times in A&E, we outline patients' views, which are overall supportive of the new measures.

2020 - Report - Being A Patient
The first report from our programme of work on patient experience.

2020 - Report - Being A Patient - Appendix
Details of the methodology and full survey results from our report 'Being A Patient'.

Latest

What does it really mean to wrap services around patients?

This free webinar will explore what it would look like if we put the patient at the centre, not as a policy ambition, but as a lived reality?
Why prioritising patient trust increases the value of using technology and data to improve research and care

This webinar will explore how organisations can partner with patients in the use of health data, placing trust and transparency at the heart of decision-making.
Patient Experience Survey: May 2026

This survey found that three quarters of people said delays negatively affected their quality of life.
The Patients Association responds to the NHS Modernisation Bill announced in the King's Speech

"The NHS Modernisation Bill contains real opportunities for patients, but also significant risks," says Rachel Power, Chief Executive.

Related

Understanding patient experiences of buying medicines online

This project aimed to explore why patients turn to unregulated online channels, the role of social media and targeted advertising, the risks patients face, and what public awareness activity could better support people to stay safe.
What does a good discharge from hospital to home look like?

This blog explores what safe discharge from hospital looks like, and what might help should anyone find themselves in an unsafe situation.
'A scandal years in the making': the Patients Association responds to Age UK's report on corridor care

"Corridor care should never be accepted as normal; it’s distressing, it strips people of dignity, and it increases the risk of harm."
Improving care for older people having surgery through meaningful patient involvement

Discover how the POPS team at Guy’s & St Thomas’ is transforming surgical care for older people through 20 years of meaningful patient involvement.
Unseen and unheard: why healthcare must listen to neurodivergent south Asian women

Patient advocate Mala shares how bias and misunderstanding shape healthcare for neurodivergent South Asian women, and why empathy, inclusion, and small adjustments can transform patient trust and outcomes.
Engaging patients to understand their experiences and expectations of rewards, recognition and remuneration for patient involvement

The report concludes that while fair reward, recognition, and remuneration is vital for meaningful patient engagement, they represent only one part of a broader approach that is needed.
Leng Review report: patients views and experiences of physician associates

The independent Leng Review funded to the Patients Association to deliver this project to help ensure that it’s work and recommendations are informed by the views and experiences of patients and carers.
Breaking down barriers to equitable care

This Patient Partnership Week 2025 session looked at barriers faced by patients in accessing healthcare and shows ways to make services fairer for everyone.
Transforming outpatient care through shared decision-making

This Patient Partnership Week 2025 session focused on a bold new vision for reforming outpatient services in the NHS over the next decade.
Why equality in care must start with supporting unpaid carers

For Carers Week 2025, Jess Plant shares her experience of caring for her mum and calls for the real support unpaid carers need and deserve.

Most read

How to see your medical records in England

This page explains how to get copies of your medical records in England.
You and your dentist

This page is designed to give you more information about finding a dentist and using their services. It includes tips on how to prepare for an appointment, the charges you can expect and how to make a complaint.
Next of kin

Your medical next of kin is someone you nominate to receive information about your medical care.
Making a complaint about health and/or social care services

Most people are happy with the health and social care they receive. But sometimes things go wrong. If that happens, you need to know how to complain. This guide sets out your rights and offers guidance on how to make a complaint.
Call our free helpline - 0800 345 7115

Need information on health or social care? Call our free and confidential helpline on 0800 345 7115 (Mon-Fri 9.30am and 5pm).
Getting a second opinion

As a patient you may wish to ask for a second opinion to confirm diagnoses, explore treatment options, or just for your peace of mind. Here’s how to get one and things to think about before you ask for a second opinion.
Long-term conditions

About 25 million people in England have a long-term condition. A long-term condition is an illness that cannot be cured. It can usually be controlled with medicines or other treatments.
Our purpose

We believe that everyone should have access to the best healthcare when they need it most.
How to have a good GP appointment

This page is to help you make the most of your GP appointment. It includes tips on how to prepare, what to ask and how to remember the information given to you.
Job vacancies

Discover what it's like working for the Patients Association and find out about current opportunities.

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